Alistair is editing away (a huge task as we have at least 3 hours of interviews for each story!)
Here are a couple of excerpts:
The first is of Deborah talking about her Mum, Betty, who is now in a nursing home in Oxfordshire. Here, Deborah recalls how the diagnosis of dementia came about…
The second is of June, whose late husband, Tony had Lewy Body disease – the same dementia as my Dad. This edited clip will give you a flavour of how the finished programme will appear…
This one is Pippa talking about her sister Louise: for the technically minded of you, this still needs colour grading (as do all the films) but this is the last process that happens.
This is the story of five carers. Ordinary people, from very different backgrounds, who found themselves in the position of carer of a husband, wife, brother, sister, father or mother who has developed dementia.
They talk about the desperate position they found themselves in – how their once certain life paths were turned upside down as they had to cope, often with little or no help, with being entirely responsible for the every need of their loved-ones who were increasingly unable to look after themselves.
They talk of the sadness and frustration which accompanies this disease. Of the often erratic and unpredictable behaviour of the sufferers, of their guilt at rising feelings of resentment – of their sadness as they watch a loved-one ‘disappear’ bit by bit. Of their fear of the future.
And then they talk about finding SPECAL, who offered them a way to understand dementia in a way that allowed them to help the sufferer remain contented, despite what was happening to them and to understand how they, as carer could cope with the demands the situation placed on them.
They will also talk of the initial moments of doubt – doubt that what worked for one person, couldn’t possibly work for ‘my Mum’ or ‘my husband’! Of learning to turn the common sense of our everyday world around in order to understand the world from the dementia sufferers point of view; a leap of faith which, once tried, practiced and understood, offers the key to ‘contented dementia’ for ALL sufferers and carers alike.
They will talk about how SPECAL helped them learn how to survive their role as carer, as it becomes increasingly difficult as the illness progresses.
The film will be made as conversations between Kate, who will tell her own story, and the other carers – putting their stories into context and explaining how the SPECAL approach worked, in different ways, for each of them.
These are inspiring stories. Stories that, simply and honestly told, will illustrate the impact and importance of the SPECAL approach.
*
I am a newly appointed patient advocate (58) for people with dementia. Working in the Dublin area only I have been assigned to 2 people who Dementia, one very advanced and one in the early stages. I will welcome any additional help and guidance Specal can provide.
I look foreword with thanks to any assistance you can provide.
Kind regards.
Bill Lloyd
I went on a Friends and Family Specal Course earlier this year and I think the whole approach is fantastic and I want more people to know about it. My father had Vascular Dementia/Alzheimers and the whole approach gave comfort not only to him but to my mother who was caring for him and for me as the visiting daughter. It provides such an insight into the plight of the person with dementia and some sort of map and plan for the carers so that it does not seem so scary.
Everyone should know about SPECAL, carers could gain such support from this approach and it will make life simpler and less distressing for all.
Sadly my father died in August this year, but I would like to raise some funds to help the film to be produced. I hope to host a coffee morning in Dec and the proceeds will pledged.
Best of Luck
Alison Glasspool
Alison, thank you! That is so kind of you! You’re right – everyone should know about SPECAL – it can give so much to so many, like you and your Dad. I’m sorry to hear you lost him, but at least you found SPECAL in time to make a difference.
A coffee morning is a great idea and I hope it goes well.
Very best wishes to you and your Mum…
Kate
[…] *NEW – Film Clips […]
Your two cli[ps are moving: felicitations! I look forward to joining you at Burford tomorrow for SPECALpro.
Dear Kate
It was lovely to see you again at Burford yesterday and I hope you and Alastair managed to film the extra ‘bits’ that you needed.
The clip I have seen and the stills look amazing and I’m sure you’ll end up with a fantastic film. I know everyone connected with SPECAL is so grateful for what you are doing.
With love
Pippa